Nijmegen periodic fever research group

Hyper-IgD and periodic fever syndrome (HIDS)

HIDS patients platform

Due to its incapacitating attacks that occur very frequently, HIDS has a great impact on social, working and cultural life. The recurrent periods of illness profoundly affect family life. In most families, life is centered around the patient with HIDS which may have subsequent disadvantageous consequences. Patients with a chronic illness such as HIDS need support, acknowledgement and information.

 

Talking with someone who knows what you are going through can be of help. In the past years, Anita, a Dutch woman who has HIDS, has helped many people through this site, through direct email contact, or through getting patients or families with HIDS in touch with each other.

 

She has now handed over this task to two successors: Trish is a mother who has two children with HIDS, and Amanda is a young woman who lives with HIDS herself. They are both from the USA.

 

Do you want to correspond with someone who may be able to understand what you are going through, and who may be able to answer your questions out of her own experience? Please feel free to contact Amanda or Trish.

 

 

 

 

Last update: February 11, 2006